recommend to take the following aspects into account when developing a lay version. Guidelines should be easily searchable and accessible immediately [30, 31]. [6, 21, 26, 27]), for example, the repetition of key messages from different credible sources such as well-known professionals. An international working group of researchers, health professionals and patient representatives of the Guidelines International Network (GIN) has developed a toolkit about patient involvement in guidelines. Patients as research partners in responsive research. What does it mean to be a patient research partner? MB and MdW were involved in formulating the inclusion criteria, selecting the papers, assessing the levels of evidence of the papers, conducting the content analysis/data synthesis and writing this paper. Allu et al. The articles are mainly about the field of rheumatology, asthma/COPD and diabetes. An analysis of trends of the management of pediatric asthma and croup in US Emergency Departments from 1995 to 2009. Elberse J, Caron-Flinterman JF, Broerse JEW. Article  Abrahamian Y, Watson H. Strategies for health system implementation of guidelines on overweight and obesity. KS made the review protocol, conducted the literature search, formulated the inclusion criteria, selected the papers, assessed the level of evidence of the papers, conducted the content analysis/data synthesis and made the first draft of this paper. Studies evaluating dissemination strategies, involving patients and/or reaching patients, were included. Abstracts that met the inclusion criteria were selected for detailed, full text review. The literature also describes a study in which patient outcomes were improved by the dissemination of guidelines through didactic educational meetings, a printed guideline and a patient brochure [33], but we do not know which of these elements has resulted in the improvements. K. Schipper. They can raise awareness by distributing lay versions to health professionals, patients, patient organisations and members of the public. The toolkit is the result of a series of consultations, a literature review and the practice and experience of the GIN members [38]. We do, however, know that event-based knowledge mobilisation may be effective for the initial dissemination of guidelines. The use of passive dissemination strategies, such as a leaflet or brochure, has proven to be insufficient to educate patients or change daily routine because such information does not endure in the long term [23]. JAMA. http://www.cebm.net/oxford-centre-evidence-based-medicine-levels-evidence-march-2009, http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/, https://doi.org/10.1186/s13012-016-0447-x. Caron-Flinterman JF. Effectiveness of guideline dissemination and Implementation strategies on health care professionals’ behaviour and patient outcomes in the cancer care context: a systematic review protocol. Do not forget the professional—the value of the FIRST model for guiding the structural involvement of patients in rheumatology research. The articles are published between 2002 and 2014 but most of them are published between 2010 and 2014 (15). suggest to disseminate recommendations by providing automatic updates of new information and resources for patients who have signed in, by interactive internet-based lectures and by developing a variety of learning tools like posters, summaries, handouts, pocket cards and slide sets for patients [21]. Several authors stress, based on their own experiences and ideas [1, 22–25] or a qualitative study among professionals [36], the importance of the involvement of patients or patient organisations in the design and development of recommendations to enhance the dissemination of recommendations in health care and to local patient organisations. 2010. Diffusion of innovations is a major challenge in all industries including health care. The level of evidence was categorised according to the design characteristics of available studies using an established hierarchy [20] (see Table 1). Article  Boulet et al. https://doi.org/10.1186/s13012-016-0447-x, DOI: https://doi.org/10.1186/s13012-016-0447-x. Pediatr Emerg Care. Their lack of familiarity with the scientific and medical terminology made communication also more difficult [2]. The involvement of patients is thus seen as important and as a key to success, but at the same time, it seems to be difficult to involve patients in an adequate way. J Eval Clin Pract. 2010. doi:10.1111/j.1369-7625.2010.00647.x. Article  Google Scholar. Implementation Sci 11, 82 (2015). EULAR has chosen to involve patients from different countries because of the international context of the recommendations. A lay version enables patients to better understand the goals of treatment, the different treatment options and the benefits and risks of each option. There are different ways that patients or patient organisations can be involved in making a lay version [1]. It is therefore important to involve a diverse group of patients (age, gender, educational level, ethnicity), and for that aim, the adaptation of existing processes might be needed to make their participation possible. A dissemination plan is needed to clarify at the start of the project the target audience, which will subsequently determine the scope, objectives, format, style and wording of the recommendations as well as the tools for dissemination [22]. Ann Rheum Dis. 6 Ways Information Dissemination is Important in Global Health By Dawud Hilliard | 2017-06-26T00:43:31-05:00 June 26th, 2017 | Blog | 0 Comments View Larger Image The search was performed in February 2016 in PubMed, Ebsco/PsycINFO, Ebsco/CINAHL and Embase. For this reason, the results of this review should not only be handled with care, it should also encourage researchers to initiate evaluation studies that will provide knowledge about the effectiveness of dissemination strategies with higher levels of evidence. Lay versions, as described above, are expected to reach individual patients. Prior M, Guerin M, Grimmer-Somers K. The effectiveness of clinical guideline implementation strategies—a synthesis of systematic review findings. This review is part of the European League Against Rheumatism (EULAR) project to develop a practical guide for patient organisations to improve the dissemination of EULAR recommendations to people with rheumatic and musculoskeletal diseases. The Quality Assessment Tool for Quantitative Studies was used for assessing the quality of the quantitative studies [17] (see Additional file 2). After reading the full text, 21 articles were included in this review (see Fig. Manage cookies/Do not sell my data we use in the preference centre. Results of a multinational survey among nurses rheumatologists and patients.
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